Lupus

[riverman]

We have a close friend who has had it for 25 years (just had a baby girl 3 years ago) and I lost a sister-in-law to it. From that limited experience my advice is you can probably control your destiny mostly by adopting a healthy diet and a happy, healthy lifestyle.

Great post MARIS!!

 

[Denny Crane]

As far as diet goes, I've lost about 50 lbs on the keto diet. It is a remarkably healthy diet. From what I've read the past few days, people on the diet who have lupus report great results.

 

[barfo]

The only I thing I know about it is @barfo is going to make fun of you for having it.

I think I just better not post in this thread.

barfo

 

[barfo]

Oops.

Best of luck with it, Denny.

barfo

 

[Jesus Christ Son of God]

Looks like I have it.

Anyone else have it? What do you do for it?

I've been taking tramadol for 2-3 weeks and it does help with the pain, but my sore spots are still sore.

I'm praying to me that you get better.

 

[riverman]

I'm praying to me that you get better.

How many of you are there?

 

[KeepOnRollin]

Don't have any information for you but sorry to hear of this.

 

[MARIS61]

How many of you are there?

Opinions vary, but there are (up to) three of him.

The Father, The Son, and The Holy Ghost.
I'm an atheist, but only after studying many religions.

 

[Further]

Sorry buddy.

A friend has Lupus, and she said that stress was a huge aggravator of her symptoms. You might need to find a way to work less, relax more, and live a slower life. My friend would meditate daily in the middle of the day and try to take naps daily as well. She is doing very well except for dried cracked skin and soar wrists and ankles.

I don't know if you have looked into marijuana but considering it's relaxing affects you might want to look into that.

Good luck, and be your own advocate with Doctors. If you need to see 10 doctors to find the right 1, than that's what you do.

 

[BrianFromWA]

The last rocket I watched launch was Yao Ming

I'm not sure you could possibly be more earth-bound than Yao Ming.

 

[BrianFromWA]

No experience, Denny, but obviously with maris on this one.

Edit: And the Son of God, for that matter.

 

[jlprk]

A friend has Lupus, and she said that stress was a huge aggravator of her symptoms...I don't know if you have looked into marijuana but considering it's relaxing affects you might want to look into that.

It's all legal in the Northwest. Move on up here, Denny.

 

[speeds]

Sorry to hear that, Denny. All the best.

 

[MarAzul]

Looks like I have it.

Bummer! Well see what you can do with Maris' advice. Maybe one of these days, I will pick up Mags and we will see how you are coping.

Ha!, probably a short time would do, hey?

 

[riverman]

I'm not sure you could possibly be more earth-bound than Yao Ming.

Once he launched...he landed as commissioner of basketball in China...pretty big leap

 

[tlongII]

Does this mean you're a werewolf?

 

[Denny Crane]

Went to the doctor yesterday and it's confirmed. Lupus it is.

The good news is that 6 weeks ago when I first saw him, he gave me prednisone, an anti inflammatory, and tramadol. Over the course of those 6 weeks, almost all of my joints no longer cause me pain. My hands/knuckles/wrists are still stiff and sore in the mornings, and oddly, the bottoms of my feet.

Yesterday he prescribed new drugs to actually address the Lupus as well as the pain.

It's clearly manageable.

W00t!

 

[BlazerWookee]

It sucks.

For House fans, it is an autoimmune disease. My white cells are attacking the healthy cells in my joints.

My left shoulder has been extremely painful. Reaching for things is difficult. My right shoulder a shade less painful as the left. From the shoulder to the tips of my fingers, everything hurts.

The pain in my left shoulder is like there is broken glass in the socket.

My knees just started hurting.

As House would say, it's an autoimmune or it's cancer.

Lupus is like full-time gout, isn't it?

Dude, that sucks hard. Hope you find relief...

 

[BlazerWookee]

Went to the doctor yesterday and it's confirmed. Lupus it is.

The good news is that 6 weeks ago when I first saw him, he gave me prednisone, an anti inflammatory, and tramadol. Over the course of those 6 weeks, almost all of my joints no longer cause me pain. My hands/knuckles/wrists are still stiff and sore in the mornings, and oddly, the bottoms of my feet.

Yesterday he prescribed new drugs to actually address the Lupus as well as the pain.

It's clearly manageable.

W00t!

I've traded Percocet for Prednisone before. That stuff RULES when you have joint pain.

 

[Denny Crane]

Lupus is like full-time gout, isn't it?

Dude, that sucks hard. Hope you find relief...

Lupus is an autoimmune disease. For about 4 months, I didn't treat it because I thought it was just tendonitis. I went to an urgent care clinic here that specializes in sports injuries, thinking they were the best suited to treat the problem.

What Lupus does is cause your immune system to attack healthy parts of the body. The fact that it progressed and affected so many of my joints on the left and right side fits the Lupus diagnosis. The blood test results also confirm it.

Today I started a chemotherapy medication that is good at treating Lupus.

Tramadol is a non-opiod pain killer. To me, it's similar to codeine in effect, but it doesn't bother my stomach as much. From what I've read about it on the M.D. type WWW sites, there's no real long term side effects, and people have taken it for 10 years. I'm on it the rest of my life, it seems.

The prednisone is a different proposition. Long term use has side effects like lowering bone density and immune system. You're right that it makes me feel really good, but I want to get off it as soon as possible. The doctor is weening me off it while the other meds start taking effect. One of them takes weeks or months to start benefiting me.

I am so much happier today than 6 weeks ago, to say the least.

 

[riverman]

Good to hear you've found a way to manage it Denny..hope you are relatively pain free and stay that way.

 

[3RA1N1AC]

Tramadol puts me on edge, I don't like it at all. Some have said that it delays ejaculation. 1/5 stars.

 

[Denny Crane]

Lupus is like full-time gout, isn't it?

Dude, that sucks hard. Hope you find relief...

I was told I had gout 20 years ago. My toe was numb, like I got a shot of novocain in it, and I was running a low grade fever (99.6) much of the time. The doctor at the urgent care clinic suspected gout.

Gout is a buildup of sediment from excess uric acid in the blood. The sediment settles in the joints and causes pain for some. The common complaint is a sore big toe.

The lupus symptoms are much worse.

 

[BlazerWookee]

I was told I had gout 20 years ago. My toe was numb, like I got a shot of novocain in it, and I was running a low grade fever (99.6) much of the time. The doctor at the urgent care clinic suspected gout.

Gout is a buildup of sediment from excess uric acid in the blood. The sediment settles in the joints and causes pain for some. The common complaint is a sore big toe.

The lupus symptoms are much worse.

It was the most excruciating pain I've ever felt. I've had attacks in my big toes, the balls of my feet, my ankles, and once in my elbow. If I owned a pair of bolt cutters I'd be walking around toeless right now...

 

[riverman]

It was the most excruciating pain I've ever felt. I've had attacks in my big toes, the balls of my feet, my ankles, and once in my elbow. If I owned a pair of bolt cutters I'd be walking around toeless right now...

I have a good friend with gout and he can't eat shellfish anymore or...drink beer at all. Both those things send the gout through the roof...so, no toes or no Coors Lite? This little piggy went to market, this little piggy stayed home...ouch!

 

[riverman]

Hope you guys all stay pain free and get better!

 

[Denny Crane]

It was the most excruciating pain I've ever felt. I've had attacks in my big toes, the balls of my feet, my ankles, and once in my elbow. If I owned a pair of bolt cutters I'd be walking around toeless right now...

They used bolt cutters to neuter SPD.

 

[Further]

Good to hear Denny, now do they have anything to cure your libertarianism?


Glad the lupus is manageable. Remember it's exacerbated by stress, don't overwork yourself.

 

[Denny Crane]

Good to hear Denny, now do they have anything to cure your libertarianism?


Glad the lupus is manageable. Remember it's exacerbated by stress, don't overwork yourself.

I'm not letting barfo get to me

 

[barfo]

I'm not letting barfo get to me

I've been known to slip in through open windows and doggie doors. I can disable your home automation just by clapping my hands.

barfo