SlyPokerCat
cats rool dogs drool
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Great! They don't catch everything because they aren't looking for everything.That's how they found the disorders my kids carry traits for.
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Great! They don't catch everything because they aren't looking for everything.That's how they found the disorders my kids carry traits for.
Of course not.Great! They don't catch everything because they aren't looking for everything.
Chris. I respect you so i'm more than happy to get a beer with you to go into full details. You're wrong here though, bud. They don't test every genetic syndrome. My wife is pregnant now, we even asked her dr. They don't test for many different syndromes. And many doctors don't know anything about these syndromes.
Textbooks are not always updated. People with the syndromes are living proof.
I'm not sure how this has anything to do with my position.There are no doctors in Portland for certain syndromes and many rural areas that have the necessary knowledge for specialized disorders. Sorry.
Plan it with @SlyPokerDog. I owe him a beer for being a great friend.Be glad to get a beer. I can't say they test for everything. I do know they did a variety of different tests for my unborn son, looking for markers for several defects/disorders. That's how they came across a marker for one. Luckily we both didn't have the marker and the gene was recessive or something and he didn't have it.
But, maybe I just had a good doctor or something.
Plan it with @SlyPokerDog. I owe him a beer for being a great friend.
You'll pay for that one.
I sincerely hope your child is ok and the surgery is successful.They don't know any better. That's the problem. They don't have experience with everything and their egos get in the way. I had that happen to me. Hence, why i'm on the east coast right now and my kid just had a surgery here. A 12 hour surgery with no guarantees in Portla d versus a 2 hour surgery with guarantees and a plethora of before and after pictures of the work from the east coast doctor in the social media groups.
When you deal with doctors sometimes they care more about their resume than the outcome for the patient.
He sounds like a complete asshole.Thanks. It went well. She will just have casts on her arms for 3 weeks. Our last doctor refused to cut them off (and previously told us he would, then changed his mind and the only way I found out was by calling to verify). He also said nobody at that hospital would do it for us. Ego because we didn't have him do it. So we are changing local hospitals and they said they cut casts for out of state surgeries all the time.
Sometimes you have to be a dick as an advocate for your family/friends etc to get anything done. The business and ego side of hospitals are disgusting.He sounds like a complete asshole.
I'm glad you got it figured out and everything went well.
I couldn't agree more.Sometimes you have to be a dick as an advocate for your family/friends etc to get anything done. The business and ego side of hospitals are disgusting.
These people are sooooo dumb. They will believe absolutely anything to keep their worldview intact.
These people are sooooo dumb. They will believe absolutely anything to keep their worldview intact.
What if they only know information from outdated textbooks? That isn't nearly close to the truth nowadays with how these kids end up? Because that's where you end up with many rare disorders today.
I don't think anybody is disagreeing with this.The internet is littered with misinformation.
I'm telling ya'll, the absolute best place to learn about rare diseases/disorders/syndromes is in parent groups. You learn which doctors to go to, the do's and don'ts, which doctors have plenty of experience and see patients with said syndrome/disorder/disease.
Parents only let parents/caregivers into these groups to create a safe space.
The best knowledge for a doctor is continued learning and experience. Hard to get experience for these things when parents take their kids to the same doctors so their children aren't treated like resume padders and science projects.
If a doctor is experienced in throat surgeries, that doesn't mean they should perform a throat surgery on a child with a specific syndrome. Unless they have experience with that syndrome.
There are a lot of syndromes out there none of ya'll have ever heard of.
The internet is littered with misinformation.
I'm telling ya'll, the absolute best place to learn about rare diseases/disorders/syndromes is in parent groups.
If a doctor is experienced in throat surgeries, that doesn't mean they should perform a throat surgery on a child with a specific syndrome. Unless they have experience with that syndrome.
There are a lot of syndromes out there none of ya'll have ever heard of.
They used to have an email listserv, kinda like this group of motley folks.
Some people might think you are exaggerating if they haven't read or listened to his vile words. But holy shit, his speech was absolutely disgusting.Accused child sex trafficker Matt Gaetz came out with the same old line, women who talk about our rights are too ugly to be fucked.
That's their idea of political discourse.
I guess anyone over 18 is an old bag to Matty.
This right here. Very well said. Republicans and Christians who aren't loudly denouncing this are killing their party and religion.You Republicans and Christians need to police your own, or you will lose all respect and agency in politics.
I don't know who Matt Gaetz is, but it sounds like I don't want to.This right here. Very well said. Republicans and Christians who aren't loudly denouncing this are killing their party and religion.
If you care about the popularity of Christianity I would suggest paying attention. It's not going to end well.I don't know who Matt Gaetz is, but it sounds like I don't want to.
I will say, if I had to take the time to denounce every person who claimed to be a Christian yet behaved in an unChristian way, I'd have little time for anything else.
The thing is, I literally don't care about "the popularity of Christianity". My role, scripturally, is to grow in my my relationship to God, to seek to glorify Him with my words, my actions, my life, to serve Him within my local church, to share His love with others through service in my local community, and if called to do so, to move outside of my community to spread the gospel. If in the course of those Biblical responsibilities, I encounter a member of the church community who is behaving in a way not befitting of the body of believers, then I have a responsibility to correct gently, with the goal of restoring relationship with God and others.If you care about the popularity of Christianity I would suggest paying attention. It's not going to end well.
*And I don't mean that as an insult to you. It's literally just a suggestion.
Amazingly (but really, unsurprisingly), my reading this morning fits in with this sentiment:, then I have a responsibility to correct gently, with the goal of restoring relationship with God and others.
The Apostel Paul said:All this is from God, who reconciled us to himself through Christ and gave us the ministry of reconciliation: that God was reconciling the world to himself in Christ, not counting people’s sins against them. And he has committed to us the message of reconciliation. We are therefore Christ’s ambassadors, as though God were making his appeal through us. We implore you on Christ’s behalf: Be reconciled to God.